Asperger's Autism causes treatment prognosis   In the past years, we have helped many students and below are kind tokens of thanks and appreciation from parents at our school.  
     
  from andrew  
 

When I brought my son Ethan into AP for the first time, I didn’t know what to expect.  I thought, “Why not try it out?”  At the very least the prospect of a therapist occupying a solid three hours of his time each day with some structure couldn’t hurt.  As with the many other remedies placed before my son, I thought it was worth trying out while keeping my expectations low.

But what Ethan got at AP was far greater than any of my expectations.  Soon after he began his therapy – within months – Ethan acquired fundamental skills necessary for learning.  He began to sit still and focus on activities.  He began to engage and take a deeper interest in toys and activities.  He began to obey simple requests.  Once these skills were mastered, I knew that the rest would fall into place.

Today, Ethan has a much greater capacity for communicating his desires.  He has a greater repertoire of play skills.  His eye contact is vastly improved.  His attention span has lengthened dramatically. At one time, tantrums and melt-downs were a feature at our home.  But now, although they occur on occasion, they are considerably reduced.  Of course, Ethan still has a long way to go.  Some stereotypical autistic behaviors are still present.  But, developmentally, I feel that the gap between Ethan and his peers is narrowing every month.

One of the greatest things that AP has given me is a simple method for me to teach Ethan effectively at home when there are no therapists around.  It is a method that works and is highly empowering.  If Ethan won’t eat his broccoli, we have a way of dealing with it.  If he insists on lining up his legos in a particular order, we have a way of dealing with it.  If he refuses to wait for his cereal in the morning, we have a way of dealing with it.  He is not potty trained yet, but I am pretty sure that AP has a way of dealing with that.

Only 5 months have passed since Ethan first stepped through the doors at AP, but I already feel that I have control over Ethan’s autism, and confidence that it can be defeated.  I have optimism that Ethan will one day recover fully, and live out his promise of a rich and meaningful life.  We are truly grateful to AP for this gift.
   
  from jenny
 

十一月十九日今天是兒子到 AP 上小學的第四個月的開始,也是我的生日,更是我近幾年來最開心的生日 (自從確定兒子患自閉症後) 。因為兒子自從到 AP 上學後在短短的三個月裏各方面都進步了很多、而且非常開心 ,我在此衷心的感謝 AP 的所有老師對他的教導跟幫助,謝謝您們!身為母親看到患有自閉症的兒子能跟着老師的指令一步步做、一步步的進步. . . . . . 那是多麼的開心跟幸福呀!真是筆墨所難形容的!也証明我們選讀 AP 沒有錯啦,也証明 AP (個性化的教學模式) 很適合我們家小孩,所以像 AP 這樣專為患有自閉症小朋友設立的小學真是學童的救星呀!. . . . . .希望更多患自閉症小朋友可以像兒子一樣受益能選讀 AP。

但 AP 是私立的!!是 AP慈善機構在香港開設的,家長要付擔昂貴的學費,對家庭經濟構成很大的壓力,也不是所有家長可以付擔的起,而且現在的校址也很小連戶外的活動空間也沒有。

好消息!學校租了更大的地方做為新校址,地方大了、有了戶外操場、小朋友的活動空間增加了,但就要付昂貴的租金。做為患自閉症小朋友的母親,AP 學童的家長,我今天有個生日願望希望我們的政府可以減免 AP 小學校址的租金,廣范推廣 AP 的教學模式,對 AP 慈善機構多些幫助、資助!使更多患自閉症小朋友跟家長早些得到適當的教育跟幫助。這是我唯一的生日願望!!

希望我們有愛心的政府可以達成我這小小的生日願望吧!衷心感謝!感謝!

   
  from carol
 

帶我們走出困境的AP學校

我用了幾年時間才慢慢地接受了兒子患有自閉症這個事實。當初,醫生說他要入讀特殊幼兒中心時,我真不能接受四肢健全、外表可愛的他卻要與殘疾兒童一起上課。 可是,現在才知道在特殊幼兒中心的那段時間原來是多麼的幸福。我們能得到政府的支助,經濟能力不高的家庭也能更安心地去照顧和教育孩子,另一方面也能調適心情去面對未來種種的挑戰。 升讀主流小學是每位特殊幼兒中心家長的願望,小兒經過評估,智商正常,有幸能入讀主流小學。但惡夢從入讀小一才開始。師生比例遠低於從前,繁增的功課、行為及學術上的要求,加上他遠低於同齡小孩的社交能力,令他的行為變得很激烈。 他做了不少失控及令人難以理解的事情,包括把自己的食物盒拋到樓下、重覆撕掉課室的壁報、不願參與任何活動而跑出課室、甚至打人……每天我都活在惶恐之中,害怕意外會發生。我又不能不讓他回校上學,怎麼辦?

暑假前,學校希望我們能轉校,我明白校方與我們都身心俱疲,轉個環境也許事情會有轉機。幾經困難,終於有一所有融合並以小班教學的學校收他重讀小一。上暑期適應班時,他又企圖逃離學校跑到街上,校方一羣人追了出去,還好及時能把他捉回學校。看到情況如此不尋常,老師也問我是否能像去年般聘請伴讀人員協助。
精神科醫生知道了事態嚴重,請我們立即決定讓他入讀醫院的紅十字會學校,並接受藥物治療。怎料在醫院學校的第一天,由於他大肆破壞,院方認為他需要住院接受藥物及行為治療。

病房接收的兒童及青少年年齡由六至十七歲並有着不同的問題行為,他們在同一病房生活,並遵守同樣的病房規則。這是我第一次和六歲的兒子分開居住,因以為這會是個終極的治療方案,只好按奈着自己的思念和擔心去盡力配合。
起初行為的確有改善,但卻始終未能和老師合作地上課。一個月後,他又固態復萌,行為越演越烈。我懇求醫生是否能讓他入讀特殊學校,但由於智商正常,他們認為並不恰當。如果讓他回去新入讀的小學,一切後果及對校內師生的影響真是不敢想像,難道我每天仍要像去年般在恐懼和不安中渡日嗎?兒子亦天天哀求着我讓他出院,並想了不少逃走的方法,我們已到了沒路可走的地步。

當時我在綱上留意到Autism Partnership School(簡稱AP) 便致電諮詢了他們。AP的服務統籌Connie聽到小兒仍在醫院,有時會因行為激烈而被捆縛於牀上,她感到十分痛心。醫生及臨牀心理學家也認為我值得去AP school一試。
參觀AP學校的一刻,看到課室温暖的佈置,有小孩喜歡的玩具,同學與老師的比例是2:1,關係和諧而親近,真有家的感覺,已能想像兒子會喜歡留在這裏上課。當與學校創辦人Toby傾談後,他們對能改善小兒的行為問題非常有信心,又能站在兒子的角度去設想,並分析給我們聽以前的做法為何會未能收效,看到他們如此有把握,我感到終於有救了。
剛參觀完的一刻,醫院又致電告知因小兒合作而又要被捆在牀上,現在在牀上睡著了。想起兒子在醫院已住了整整兩個月,作為母親的心痛與內疚在這一刻完全爆發了出來。我要馬上把他「救」出來,讓他來AP上學。這年來的壓力突然找到了出路,我失控地在丈夫懷裏大哭起來,哭了整整大半天才能停止。

上課的第一天,他仍很抗拒,又想逃走。班主任老師友善地陪伴他做了很多不同的遊戲和活動,他安坐了下來和我說再見。放學後,他告訴我明天還要回來上課,我對AP School的信心也增加了不少。
改變不斷在學校裏發生,他由事事與人作對變得願意合作,不再與老師不停争抝,破壞性行為漸漸減少。後來他還變成一個有禮貌的孩子,踏入學校便主動地和老師打招呼。他常與我分享校內發生的事情,告知每天和小朋友一起做了甚麼活動以及老師跟他說的話。我終於可像其他父母般與孩子分享上學的樂事。現在老師與我並列在他最喜歡的人排行榜第一位呢!

因經濟問題,除了學費我們已未能支付額外的家長訓練費用。但校方卻非常體諒,願借出書本讓我們閱讀,並讓傭人和我到課室學習如何處理他的行為問題,將校外發生行為問題的機會減低,以免影響他人。現在我能安心工作,而傭人接送兒子時也沒有了以前的危險和瘋狂行為。看着他一天一天的進步,對AP老師們的付出真有說不盡的感激。
近日他們更為兒子將來鋪路,使他有能力回到主流學校上課,訓練及裝備他有內發動機去學習,有一顆對自己有要求及會為自己而作出努力的心。

醫生聽了兒子的近況也替他感到幸運,告訴他要珍惜所擁有的。醫院內仍有不少像他的孩子,因父母未能支付學費,入讀AP這種提供專業治療的學校,只好在醫院與主流學校之間進進出出。另一位醫生也表示我們有能力讓他入讀AP學校真好。他們常面對這些難以融入主流學校的孩子,也真不知該轉介到那裏去才好。臨牀心理學家、學校社工、親們友也認為這個選擇正確,為我們能找到出路而高興。

安定合作的行為及情緒是孩子學習的最基本條件。AP學校能協助有溝通及社交因難的孩子真正地融入主流、融入社會。可是,這所非牟利的學校,現正面對着每年百多萬元的虧蝕及即將加租的壓力,但他們仍為孩子努力,並堅持地提供優質服務。

香港,不能融入主流學校而又擁有正常智商的特殊孩子是應該被重視的。 主流學校的老師每天在課堂裏要完成計劃好的課程進度,照顧數目不少的學生,恐怕難以兼顧有嚴重行為問題的學生。而AP亦有為主流學校提供支援服務,讓他們掌握最有效和適當的方法。 願政府協助AP,提供一所校舍或給與資助,以減低家長的負擔及校方營運的壓力。為我們及更多有同樣需要的孩子着想,AP學校的存在是必須的,是我們應該感恩及珍惜的。

         
    from marie    
   

Cole had always been a pretty happy child and was not prone to tantrums or overly disruptive behaviours. But he seemed to have little awareness of the world around him unless it involved moving or flashing objects, like fans and lights, or transports. He was fascinated by all the buses and minibuses in Hong Kong.

Cole loved being on the streets of Hong Kong but hated it when we took him inside buildings or on the quiet walking trails. We always joked that we could leave him on the corner of Peddar Street for hours but he couldn’t last five minutes in a shopping mall or grocery store. It was difficult to take him to play groups or similar activities because he wouldn’t sit in a circle for more than a minute or so. We were concerned because, although he was almost two years old, we couldn’t imagine how he was going to sit still in school. When he turned two and still wasn’t talking we began to look for answers. Although we got reassurances from speech and occupational therapists that he would be OK with a bit of speech and play therapy, we knew that there was something more going on. After a lot of reading and Googling, we realized that Cole definitely had autism. Through a friend who knew someone who had an autistic child, we were referred to Autism Partnership.

Cole’s assessment confirmed our diagnosis and we began therapy at Autism Partnership in April 2006, when Cole was just over two years old. At that time he did not speak as all, except for a few sounds like mama or dada. After he started therapy, we could see differences in him immediately. He became more attentive and we were stunned that he would actually sit with the therapists and willingly participate in the therapy sessions. Since Cole started therapy, he has made tremendous progress. When he started therapy, his language skills were at the level of a 12-month old, which basically meant that he had no language skills.

After one year, his language was about six months behind his typical peers. At just over four years old, he is now completely verbal with language skills equal to typical children his age. His other developmental tasks have made similar progress. After one year, he was on average 6 months behind his typical peers and after two years of therapy, he has caught up to his peers on most indicators. Of course, he still has autistic traits but he is able to participate in most activities that his typical peers do and is attentive in classroom and group settings. He is developing social relationships with his peers and is able to play appropriately with other children his age. Cole now participates in a regular preschool program and we anticipate that he will be able to attend regular school in another year when he is old enough to go to P1. I am certain he would have made this level of progress if he had not gotten early and intensive therapy.

   
       
  from alice
 

Having our children at Autism Partnership (AP) has made a huge difference in our lives. As parents, the continuous support of the therapists, supervisors and clinicians have allowed us to make sense of and deal with the continuous challenges that face us. AP's parent training courses are given by a team of enthusiastic and very patient trainers, whose knowledge and experience helped us obtain the necessary skills to become better parents. Aside from the in-house support and expertise, we had additional speech concerns that we felt needed to be addressed, and AP was able to invite a highly experienced, well-regarded speech therapist to evaluate both children.
 
Both children have benefitted immensely from their one-on-one therapy sessions. We could not be happier with our therapists, whom we have found to be well-trained, well-disciplined, and extremely supportive and patient. Because we are juggling many therapists, the advice and guidance we receive from the children's supervisor and other clinicians has been crucial for us to ensure consistency and progression.
 
For our children, AP has meant Opportunity. Our older son is at AP Primary School where he is learning school skills in a safe and understanding environment. In addition to academic skills, he is learning other necessary skills such as how to interact with his classmates and his teachers. And because the school is affiliated with AP, there is a high degree of interaction between his teachers, the principal and his therapy supervisor to make sure that areas of concern are addressed. The school recently organized an overnight trip to a camp and although we were quite apprehensive about the whole thing because he had never been away from us at night, we also knew that he would not get another opportunity like this. We would never have trusted our son with anyone other than his teachers and his principal, and the fact that they willingly took on such a challenge in order to give him such an opportunity is a great credit to them. Our younger son has been going to regular playgroups, but we are realizing that he needs to learn how to interact with other children and listen to the instructors. Again, we are fortunate in that AP has a playgroup for his age that will target these necessary skills.

Our experience with AP has been very positive and thanks to them, our children have shown the benefits and are learning how to be the very best they can be.

   
     
    from lawrence's mandarin teacher at school  
   
At the beginning of the school year, Lawrence can’t sit still and difficult to understand the teacher.  I can see Lawrence has made great progress the whole school year.  With the help from AP’s shadow, he can concentrate for some time during the circle time every day.  He understands what the teacher asked him to do now.  It is glad to see he starts to join parts of the group activities in recent days.
 
     
    from yeung's mom
   

我們的兒子洋洋早於兩歲時便被評為有自閉症傾向,我們立刻安排他入讀普通幼兒園的兼收位,在等候入學期間,我們自費參加早期訓練。在個別的訓練中,洋洋有明顯的進步。當洋洋正式入讀兼收位後,老師也指出他在個別訓練和大組上課的表現是判若兩人,於是建議我們安排洋洋入讀特殊幼兒中心,讓他可以有較密集的訓練和在小組中學習。

在洋洋3歲半時他便順利地入讀特殊幼兒中心,我們滿以為這是最好的安排,那知,惡夢才正式上演!由於洋洋未能在陌生人和環境中表現出他應有的能力,他一開始便被編入一組完全沒有語言能力的學童中上課。自此,他慬有的單音與字也消失了!直至我們安排了私人的言語治療師,作出個別訓練後,他才開始說單字。其後,當我們有機會參與部份的課堂中,我才明白為什麼兒子的情況會每況愈下。在一個老師對6 個學童的人手比例下,老師往往顧此失彼。由於全組的學童均是患有自閉症的,他們在言語、社交、溝通、情緒、專注力和學習上均有不同程度的障礙,因此,老師為了要吸引學童的注意,往往要逐一專注地教導。當洋洋在等候和不被老師關注時,他便會退入自己的世界中,出現”遊魂”或自我刺激的行為。這樣,不但嚴重地影響他的學習,還生出不少行為問題。此外,目前特殊幼兒中心多採用”結構教學法” (TEACCH)來教導自閉症學童。當中强調以建立常規性來提昇他們適應環境和學習的能力;利用大部分自閉症患者特强的視覺能力,作為媒介以加強學習。可惜,對洋洋而言,這些方法只增加了他對特定程序的固執性和對提示的依賴性。這些外在的特別協助下,無疑使他能適應幼兒中心的日常生活運作,但郤大大削弱了他內在的自主性(inner-drive)和學習動機,未能真正適應社會多變的生活。

眼見兒子的學習和行為問題越趨嚴重,在暑期間我們安排了他接受”應用行為分析治療”的個別訓練。在剛開始的1 個月後,洋洋在環境意識、對別人的反應和聽從指令上已有明顯的進步。可惜,當暑期後他重返特殊幼兒中心上課,又故態復萌。即使我們仍然在下課後安排他進行”應用行為分析治療”的個別訓練,但由於他大部份時間已習慣了特殊幼兒中心的訓練模式,效果已大不如前!因此,當我們得悉 AP School設有中文班,我們便安排洋洋轉校。他於本年四月中才轉讀此校,至今約半年多,但他在各方面均有明顯的進步!在每個月的”個別教學程序”(Individual Education Programme) 會議上,老師都能對洋洋的問題作出透徹的分析和設計出針對性的訓練。而1:2的人手比例和密集式的訓練,增加了他在課堂的參與性,提昇了他的專注能力的同時,又大大減少了他的自我刺激和行為問題。在訓練過程中强調學童的獨立性和自我控制能力,使洋洋所學習到的更能內化和鞏固。加上靈活的教學方法和分段式的學習模式,讓他能愉快學習和建立自信!從前,我由送他返學便開始担心,現在我真的可以放心下來。看着兒子每天都有進步,每天都是那麼開心,這已是我們作為父母最為寶貴的!在養育洋洋的過程中,我們感到彷徨和艱辛,我們嘗試了不同的治療方法,運用了各方面的社會服務和資源,但還是得不要領!不過,在陪伴洋洋的成長過程中,我們可以肯定的是︰自閉症兒童有着無限的潛能和可能性。

如果,我們找對了鎖匙,他們的門是可以打開的。而在眾多的治療方法中,我們認為”應用行為分析治療”是最為科學化和最有果效的方法!可惜,這個方法郤得不到任何的資助!但為了給孩子最適合的治療,期望將來他能自力更身,我們唯有咬緊牙根,承受着沈重的經濟壓力,讓他在AP School 繼續升學。當我們向其他自閉症學童的家長分享我們的經歷時,他們均感現今的特殊教育未能切合子女的需要,紛紛向我們查詢學校的資料,但往往因昴貴的學費而郤步!因此,我們期望有關方面能增加硏究自閉症的資源和檢討現有對自閉症學童的教育政策,為AP School,一所專為自閉症學童而設的學校提供資助,使學童最終能投入社會,發揮所長。

               
               
             
             
             
             
             
             
             
             

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